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A novel method of notification to profile childhood visual impairment in Scotland to meet the needs of children with visual impairment

RIDBC Renwick Centre, University of Newcastle, NSW, Australia, john.ravenscroft{at}newcastle.edu.au

Andrew Blaikie

Queen Margaret Hospital, Dunfermline, UK, Andrew.blaikie{at}nhs.net

Caroline Macewen

Ninewells Hospital, UK, c.j.macewen{at}dundee.ac.uk

Anne O'Hare

University of Edinburgh, UK, A.O'Hare{at}ed.ac.uk

Lyn Creswell

Royal Hospital for Sick Children, Edinburgh, UK, Lyn.cresswell{at}luht.scot.nhs.uk

Gordon N. Dutton

Royal Hospital for Sick Children, Glasgow, UK, dutton{at}duttonhome.com

The purpose of this study is to pilot a new notification system for children with visual impairment (VI) and describe the initial summary findings. A system of notification of children in Scotland with VI was established. Information concerning this system was distributed to professionals working with visually impaired children to forward to parents. Parents, teachers and health professionals were all encouraged to notify children with VI. 975 families with children with (VI) were notified and received information and support from Visual Impairment Scotland (VIS). For this review, the data from 850 parents were included in the analysis. The provision of a range of support services for parents and children with VI has led to a wide range of children being notified to VIS. The causes of VI can be recorded as well as other useful demographic information. The methods used could be applied across the range of low incidence childhood disabilities.

Key Words: notification • childhood visual impairment • profile

British Journal of Visual Impairment, Vol. 26, No. 2, 170-189 (2008)
DOI: 10.1177/0264619607088285


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